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Summertime Sadness

Sweet summertime.  I live for the summer.  One of the main reasons I never wanted to raise my family anywhere but Marshfield, is my love for the beach.  I call the ocean my natural Prozac.  The only thing that can top a summer beach day in Marshfield is the 3rd of July in Marshfield.
Drive on beaches = heaven

For a couple of months now I have felt great, and not just MS great, REALLY, HONESTLY great.  I have regained my mobility and can run around after my kids.  I have been putting in serious work at the gym to strengthen my muscles, and I have finally started to figure out this stay-at-home-mom thing (don't let anyone tell you this shit is easy).  I have heard about Uhthoff's Phenomenon, but had spent a couple of days on the beach already and only had some minor numbness and tingling in my feet.

July 3rd, aka my second Christmas, was coming.  The night before, I was prepped and ready to go; (2 lbs of pasta salad made, Jell-O shots in the fridge, cheesecake topped with fresh berries calling my name) a marathon beach day was ahead of us followed by a cookout, swimming and fireworks with friends.

My son, James, bridge jumping July 2, 2019

Then 3am happened.

I woke up and stumbled to the bathroom.  I was walking as if I was drunk, but I hadn't had anything to drink.  I immediately felt dizzy, lightheaded and vomited.  I woke Mike up because I was sure something was wrong, but was able to go back to sleep when I realized I felt much better lying down.  The next morning the symptoms progressed.  I called my mother in law, paged my neurologist and got ready to head to the hospital.

MS is still new to me.  I don't know what is "MS related" and what isn't.  Was this just another flare or was it something else neurologically going on with me?  The scary part for me lies in the unknown.

Long story short, I spent the 3rd, 4th and 5th of July at South Shore Hospital (thankfully my neurologist didn't think I needed to transfer to the Brigham) receiving 1,000mg IV Solumedrol and getting a brain MRI.   I had been diagnosed with another MS flare.  My symptoms are slowly improving now.  I have been in bed pretty much since I got home, still feeling dizzy and lightheaded, but most of all exhausted.  Every day is a little better than the last, so I am hoping I caught this flare early enough and got treatment quick enough that it won't be as bad as last time.

So what brought this on?  Your guess is as good as mine.  The heat? Maybe.  Running around too much?  My husband thinks so.

What have I learned?  I have learned that MS wins.  As much as I want to be the almighty, powerful woman, my disease will rear its ugly little head time and time again.  I've learned that I need to slow down.  I need to learn my body's cues.  I know now that my kids will be fine if every day isn't a party all summer long.

This flare has been harder on me mentally.  I am beat down and bruised from this one.  I thought that I was going to be one of those people that had one flare, got treatment and it never happened again - but I am not.   I know that things could always be worse, but sometimes I don't need a cheerleader, I just need someone that will sit and enjoy a beer with me at my pity party.

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